MS or CCSVI - - - either way, symptoms I wanna keep track of:
Let's start at the bottom and work our way up. Shall we?
1. Toes aren't mine. They are often discolored. Right foot I can feel toes wriggle against each other. Left foot I cannot. Toes, feet and ankles swell often. Both ankles are weak and after too much use will give out. I suffer from drop foot. Right worse than left.
2. From the knees down my legs feel like huge blocks of ice. I can swear my feet are freezing but when Jason touches them he says they are warm?! Mystery. Knees are stiff and achy.
3. Thighs. Besides feeling extra huge and heavy I get a weird cool, trickling sensation down the backs of them from time to time. Bizarro, I know.
4. Whoa, Nelly! We've made it to the sacred private parts. Leaving out the gory details I will report here only that I have been diagnosed with a neurogenic bladder. Suffice it to say she has a mind of her own.
5. And her close buddy the bum isn't the most cooperative of characters either. Every 5 to 6 days is my normal. "End" of report on this (pun intended).
6. On to the belly. So big and so round I could pass for preggers. Yay, food!
7. My breasts? Nah. My rib cage. And the cursed MS hug! What's that you say? It's an immense, intense pressure beneath my breast spreading around my sides and at times clear around to my back. Constantly there but at times excruciatingly there. Yeeouch!
8. My chest. I get out of breath waaay too easy. And upon any exertion my neck and shoulders ache. The more I do the worse it gets. It gets to the point that I feel like I have a 400 lb. man on my back. Ever seen me walk all hunkered over? It's because that fat bastard is on my back.
9. Arms are okay, I guess. Just super heavy, weak and easily fatigued. Grip in my hands is iffy at best. Feeling is sketchy. Definitely diminished. Cannot tell hot from cold. And shaky and uncooperative whenever any precision is asked of them. i.e. shuffling cards is difficult and my handwriting never comes out the same. As for typing - thank goodness for spell check. I used to type over 75 wpm.
10. Finally to my head. Headaches. Some baaaad. Loud pulsing, swoooshing noise behind my right ear. Vision disturbances. Mostly blurring. Worsens with heat or exertion. Worse in right eye. And my teeth - I grind 'em. Also, I get light-headed all too often effecting balance and my ability to walk straight. One might refer to this condition as DIZZY.
FYI: [Dizzy is not to be mistaken with drunkeness or laziness as my condition oft is. Examples include but are not limited to my bumping into walls and furniture and remaining seated at church even after being asked to stand for prayer.]
Am I done then? Or did I FORGET anything? Ha! My memory sucks! The online MS community calls it "cog fog." And boy do I got it. It can be likened to what we call a blond moment around here. So what if I'm a blond and an MS sufferer?
Once an honor student, always an honor student. To explain, I have trouble understanding some things (especially 4th grade math problems these days) and even more trouble explaining. Understand? Good, 'cause I'm not sure I do.
Funny examples: Wanting to go see a movie we just saw with friends two weeks beforehand. Or asking Jason to go to Wal-Mart to get us lunch. There's no Wally World in the Vern. Question is did I mean to say McDonald's or Dairy Queen? Jason has become an excellent interpreter.
How about trying to tell the boys where their socks were this morning? I was pointing at the garage door. Saying the fireplace. And the kicker is they were in the hallway across from the bathroom waiting to be packed away for our trip. If it hadn't been for Jason the boys would have been sockless this cold November day.
Might as well laugh at yourself, right? Hehehehehe . . . considering the sobering content of this post it has been surprisingly fun. Has it reminded you of anything? It sure has me. It reminded me of a good 'ol fashioned David Letterman's Top Ten List. So we should give it a fancy name, right?
How's about "Angela's Top 10 Things She Sure as Hell Won't Miss Should They Miraculously Disappear?" Can I get an Amen?